When Alex was first “threatened” with failure to thrive, I looked for information outside the clinical setting. At first, I didn’t find anything that could help me with Alex. Sure, there was generic information geared towards the needs of infants, but Alex was not an infant and sensory aversions weren’t even mentioned in the articles or database entries I could find. I was surprised and disappointed, to say the least.
Furthermore, my research about autism and diet or autism and feeding would often turn up results that I had no interest in. I’m referring to GF/CF diets, herbal supplements and the like, all claiming to alleviate or cure autism to one degree or another. Now, I readily admit we tried the GF/CF diet, which turned out to be a good way to starve our kids. (Not that we let it go that far.) After all, the reason that Alex was on the verge of failure to thrive was because he’s very stubborn about what he will and will not eat; and bread that is GF/CF is not, to Alex’s mind, actually food. (Honestly, I’d have to agree with him on that.)
Later, I stumbled across some information, but it was written by researchers for researchers or medical professionals, not for parents. Occasionally I’d stumble across a pertinent article, but rarely did it offer anything new or insightful.
Now, Alex and Ben are both doing well. They’re gaining weight. Both of them actually have a visible layer of fat around their muscles! As much as obesity is a problem in this country (and a personal problem, in my case), fat on my kids is good. They’ve got plenty of energy, which wasn’t really a problem for Ben, but it used to be a problem for Alex. They’re both expanding their diets and getting the nutrients they might otherwise lack through prescriptions of PediaSure. In short, they’re thriving.
It’s been a long road and now that we’ve traveled so far, I’m hoping to gather information from reputable sources and create a guide for others to use, the kind of guide I wish I’d had.
Along those lines: Do you have experiences with feeding issues? Would you like to share them? What questions would you like answered? Let me know in the comments or contact me directly.