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On Charity, Social Work, and Public Administration

  • Posted on January 16, 2015 at 10:00 AM

It is the opinion of this writer that any time you make a generalization, you enter dangerous territory. Among other things, you risk making the totality of your point (which might be valid if it were better defined) null and void by a single, contradictory example.

[Enter James I. Charlton’s Nothing About Us Without Us from stage left]

In what must be considered poignantly illustrative of their perilous and degraded status, people with disabilities are significantly controlled by charity and social service institutions (broadly considered, private welfare agencies, asylums, and residential facilities). This is the case throughout the world, although charities are more prevalent in the United States and Europe.

Some might see that it is contradictory to point out that most people with disabilities do not have access to a safety net while at the same time criticizing charities and social service agencies. (p.93)

Charlton’s premise consists of a few main points:

  1. While charities and social service agencies (lumped together, falsely) do help some, they also create dependency.
  2. They contribute to the degradation and isolation of those they help, but taking care of clients whilst keeping them out of sight.
  3. If the problems they ameliorate were solved, the charities would cease to exist.
  4. Many of the people who do this work do so because, in the words of Billy Golfus, “Their game is about wanting to be in control of other peoples’ lives,” (p. 94).

First, charities are nonprofit organizations that gather donations from the public (through public and private grants, as well) in order to meet an organizational mission. These charities may hire social workers, but a social service agency is, almost by definition, a government organization, which also hires social workers. Lumping these very different kinds of organizations together as a single problem or as a collective is logically unsound, because they operate and function in very different ways for very different purposes.

Second, the unfortunate reality is that people who cannot support themselves are dependents. While much is done that encourages continued dependence, this is true across the entire strata of society, from families to international governments. If that is to change, then services need to be made available that contribute to independence. It’s a difference of paradigm and mission, not organizational or functional structure. A nonprofit that takes creating independence, or better yet interdependence, as its mission would still be classified as a charity or a social service agency, depending on whether it’s independent or governmental in nature.

Third, organizations with such a mission already exist, as a byproduct of the same attitudes and social changes that have made the DRM movement possible. There are organizations that have already made the transition from disempowering caretaker organizations to empowering education organizations.

 

Fourth, any organization that fails to adapt when its environment changes, dies. Those that try to keep the environment from changing inevitably fail and die. Only those that change survive. This is no less true of charities than of any other organization.

Fifth, there certainly are people who strive to exert control over others’ lives. Some gravitate towards social work. Some start charities. Some start businesses. Some start wars. Most just have kids. We live in a broken world full of such people and the rest of us just have to live with that, or change it.

Despite the fact that I can pull apart the argument on logical grounds, there is truth to what Charlton is saying, especially from the perspective of people who’ve been disempowered for most of their lives. If people are ill-prepared to take control of their own lives, then there are those who will try to withhold control from them. Again, most of these people are called parents. There’s a time for this, and there’s a time to let go. And it’s never easy knowing which time any given moment falls under. There is nothing inherently malevolent or oppressive about this, though there are certainly malevolent and oppressive people who engage in the behavior.

For me, the heart of the matter is something that Charlton would seemingly refute or ignore. Charity is, loosely translated, most properly equivalent to “brotherly love.” The word as it is used today is a deviation of the charity found in the King James Bible in 1 Corinthians 13, which states in verse 3, “And though I bestow all my goods to feed the poor, and though I give my body to be burned, and have not charity, it profiteth me nothing.” The whole of this chapter gives ample evidence that 1) giving and 2) serving are not charity, that charity is loving others in Christ-like fashion, and that these acts only do good when they are done in the spirit of true charity. As Charlton seems quite anti-religion, he might find it rather ironic that his observations are proof of the soundness of this part of Jesus Christ’s doctrine, at the very least.

Shortly after reading and getting wound up over this segment, I had a chat with a social worker who also happens to have learning and neurological disabilities. This person had been struggling for months at work, because of miscommunication resulting in part from her reluctance to disclose her own disability and in part from her co-workers’ apparent distinction between things-that-apply-to-clients and things-that-apply-to-coworkers. This isn’t the first time this issue has gotten in the way of her work, either.

Part of it is that Charlton’s not wrong in his observations, he’s just wrong to generalize those observations and apply them to two entire sectors in the global economy. Unfortunately, he’s right that most of the professionals operating in these sectors have been taught in ways that contribute to the very problems he’s cited. These are people who often don’t know better, in that they’ve never been clients. The people who have been clients tend to be marginalized, in part because they’re not taught how to counteract the forces that marginalize them. These issues are not particular to disabilities, but are holistic and systemic within both sectors.

My friend has been a client in almost every applicable way. She has had disabilities, presumably for her entire life, but has gone undiagnosed or underdiagnosed for most of her life. She grew up in extreme poverty and in an environment rife with abuse and neglect. She has been failed time and again by the systems that supposedly operate to protect and support people like her. She entered her profession to do better for others than was done for her. And she’s not alone. There are many, many like her all over the world, who have struggled against terrible odds, who have become professionals in either the nonprofit or public sector, and have chosen to do better for others. And Charlton’s rash generalization erases them all.

God is Good!

  • Posted on August 21, 2013 at 10:00 AM

I rarely indulge in spiritual or religious announcements on this blog, but this time I simply cannot resist. As you may be aware, my family has been struggling lately. Things got especially difficult last month.

But after the darkness, there is light!

For starters, I have been admitted to Rutgers University and I will soon be starting my fall classes! I will be studying Public Administration and learning how to create the nonprofit organization that is taking shape in my mind. I’m very excited!

I’m also seeing more freelancing opportunities and earning more income. I’m at the point in my career where I feel like I’m holding one of those Magic 8 balls with the triangle telling me, “All signs point to yes.” With that thought, though, comes a Hitchhikers Guide to the Galaxy flashback—all I need now is to discover what the question is!

More than anything, I have to say that God is good, because I’m in much better spirits. Whatever comes, He will see us through. Along the way, we will know the joy He gives us. For now, that’s more than enough!

And, of course, the boys’ school is starting up soon. Willy is entering high school. Life is going to have a whole new normal for us to deal with. And I’m not even feeling anxious about it!

Working on Purpose

  • Posted on July 12, 2013 at 10:00 AM

There is an organization called Echoing Green that I found, rather randomly, while researching my options for another graduate degree. Along with the fellowship program, which I hope to apply for once I get closer to that stage of my nonprofit development, they also give workshops and have a book called Work on Purpose by Lara Galinsky with Kelly Nuxoll. I used a gift card my dear cousin gave me as a graduation gift to get the book (thank you, Katie!) and promptly read it.

As I read the progression the individuals in the book went through to get to where they got to, I realized that I didn’t need the book the way I thought. Instead of showing me how to get where I wanted to go, it validated how I am getting to where I want to be.

As soon as I started mentioning a second graduate degree, people tried to warn me away. They have good reasons. Yet, this seemingly round-about path is providing me with exactly the foundation I will need to do what I want to do.

Business degree: Yep, that’ll be useful.

Written Communications degree: Yep, that one too.

And yes, the next degree will serve a different, but equally useful purpose.

Sometimes we go about our lives, not knowing what we’re working towards, because we’re not thinking big enough. God knows, though, because He’s a lot bigger than we are and He knows what we can really do.

Changing the World

  • Posted on July 10, 2013 at 10:00 AM

Now that I have convinced myself that there’s a way for me to start up the nonprofit organization of my dreams without winning the lotto or writing a surprise bestseller, I’ve started talking about the organization I want to found. I’ve been having conversations with random people all over the world, often ones who do not have an established, vested interest in autism.

They take me seriously.

This surprises me.

As I child, I can remember telling people I wanted to be an author and that I wanted to make a living writing books. People tended to steer me in other directions. I’d need a day job, they’d say, like being a secretary. I’d need a real career, they’d say, and if I wanted to write for a living I should think about becoming a journalist. Nobody ever really took me all that seriously when I said I wanted to be an author.

Don’t get me wrong. My parents fed my voracious appetite for books. They let me expend endless amounts of paper writing. They even let me use up their envelopes and stamps sending out my manuscripts, starting at the tender age of twelve. They didn’t keep me from trying. They just wanted me to be realistic. After all, I was a dreamy sort of child and realism was a foreign concept for me.

I look back to where I was and see where I am and look ahead to where I want to go. I see why people take me seriously. But I also know that the dream that’s chosen me is a big one. In many ways, it’s not realistic. But then again, it wasn’t realistic to go to graduate school while raising three children with special needs. Not only did I finish my degree, I got straight As, top marks, a 4.0.

To heck with realism. I know how to dream and I know how to work hard to realize my dreams.

Then, I take a closer look at where I am and what I’m doing: I say I want to change the world. I realize that all those random conversations do exactly that. They change the world. It’s only a little bit, sure, but every time I open someone’s mind to the idea of helping people with neurological differences take part wholly in society, regardless of the severity of their special needs, I start a chain reaction.

The more people I convince of that the closer I come to making my dream the new reality.

So, they take me seriously. Good, because I am serious. I will change the world. And that’s pretty cool!