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Autism Organizations: Which Ones Do You Trust?

  • Posted on July 30, 2012 at 8:00 AM

There are many autism organizations out there—from ASAN to Autism Speaks and all sorts of organizations in between and among them.

They all have their own agendas, their own missions, their own purposes. They each behave differently, though there are similarities. Their memberships are different, though there are similarities.

Which ones do you trust and why?

Up until now I’ve steered clear of joining any organizations, because there are often legitimate voices criticizing each one. I did my stint in politics before my children’s diagnoses and my experiences destroyed my faith in the integrity of political organizations. It is far too easy for political organizations to lose sight of their original agendas, to play lip service to those agendas, while directing the efforts of the organization into some expedient side-road. And that’s for those organizations with legitimate goals in the first place.

I’m not sure I’ll ever go back on that decision. But membership—that commitment—isn’t the only form of participation. Still, it’s difficult to know which organizations are worthy of becoming an ally and which organizations are too vested in their own self interest that they act at the expense of the causes they proclaim to support, the causes that are their public reason for existence.

So, which autism organizations do you support and why? How do you show that support?