Epilepsy: The School to Summer Transition

  • Posted on June 19, 2013 at 10:00 AM

This school started with some big news: Willy was diagnosed with epilepsy, another neurological disorder to go along with his autism diagnosis.

Willy was a lucky kid when it comes to his epilepsy. The doctors’ first guess at which medicine would control his seizures was correct, and the dosage he needs to maintain control is relatively low. Now that 2013 is almost half over, I’m glad to say that he has been seizure-free throughout this calendar year. Many people with epilepsy aren’t so lucky or so easy to treat.

A big part of the success of this treatment, however, involves Willy remembering to take his pills in the morning and the evening. He needs both doses. He needs to remember every day. This is important.

It’s also easy to forget. When you feel sick, it’s relatively easy to remember to take your medications. When you don’t feel sick, it’s easy to forget. Willy hasn’t felt sick in many months, which is a really long time for him.

I was worried that the change in routine would mess things up. After all, Willy’s pill-taking revolved around his school schedule, and changes to that schedule tended to mess things up during the school year.

I’m happy to report that Willy has made the adjustment almost completely independently. He takes his morning pill when he wakes up, whenever that happens to be, and he takes his evening pill before he goes to bed, whenever that happens to be. He’s needed few reminders. He’s exercising almost complete independence.

I’m so proud of you, Willy! Great job!

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