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Back to School Ruminations

  • Posted on September 3, 2009 at 8:00 AM

Comparing and contrasting Willy’s educational experience with that of his brothers always makes me a little sad.  Willy is fortunate in that he’s found a way to take the world as it is and interacts on a level that most people understand.  He’s very much autistic and still faces many challenges in how he interacts and what he’s considered able to do and what he is able to do (which are not always the same).  But, he has a strong support system at Roosevelt and is able to compensate for most of his differences to succeed in a socially recognizable way.  Alex and Ben are on a different track.  They do not demonstrate a sufficient amount of self-control, communication, or interaction to participate (as per the Janesville school system) in an integrated environment.  Their educational needs are met in a segregated classroom called the CD room – for cognitively disabled.  The fact that they are not, in fact, cognitively disabled plays little significance in this designation, because they are not able to communicate their intelligence in an academically recognized fashion.  Roosevelt is not equipped to meet their needs, so they are sent to attend school together at Kennedy.

I don’t mean to slam Roosevelt or Kennedy.  The decision here is made at a level neither school can change.  Both are goods schools with good people and both try to service their students as they are able.  But I cannot help but remember my own time in school.

In one of several grade schools I attended there was a student with Down ’s syndrome.  I only saw her on the playground and many of the students made fun of her.  She first came to my notice when I saw another child push her for no apparent reason other than her poor balance meant she’d fall with only a little push.  I didn’t usually see things like that, because a friend and I would go off as far in the field as we could to play our own games of make-believe.  This girl would always come out a few minutes later than us, so we’d already be gone.  After seeing our classmate push her down, we went to her an invited her to come play with us.  She couldn’t quite follow our game, but enjoyed our company. 

In junior high, I was somewhat segregated.  They called the classes I took “gifted and talented” or “differentiated.”  They were the opposite of CD classes, designed for students who excelled instead of those who struggled.  I enjoyed these classes, because I was challenged academically for the first time in a long while.  Yet, integrating with non-differentiated students in the regular classes was difficult.  I was set apart, and they knew it.  Most of my fellow differentiated students had the social skills to compensate, but I didn’t.  I was an outsider.  Not like any of them and being segregated for most of my classes seemed to make that worse.

In all my time going to school and in all the different schools I attended, I was only aware of the one girl with cognitive disabilities.  The rest were kept out of sight, but I know now there had to have been more.  Kennedy doesn’t try to keep Alex and Ben out of sight.  Each child is assigned to an age-appropriate classroom with their typically developing peers.  Each will visit this classroom as their schedules allow.  And, at my recommendation, last year on Fridays one of Alex’s peers would come to the CD classroom to visit him.  This became a special treat that his peers looked forward to and enjoyed.

So, progress is being made.  Yet, I know fully integrated schools exist and that they can work for the benefit of all the students.  I know that children with special needs should not be kept out of sight for the comfort of the bigots.  I remember sitting in school, surrounded by my predominantly white peers, and learning about the history of segregated schools.  I remember when I first learned what happened in Little Rock.  I remember raising my hand and asking, quite honestly, “But why would they be angry that the kids wanted to go to the good school?”  I didn’t understand.  In a way, I still don’t.  I can wrap my head around racism and bigotry.  I see it as wholly illogical, but I understand that it is driven by emotion not intellect.  I cannot wrap my heart around it.  I cannot understand those emotions that drive racism and bigotry, however well I can label them:  hatred, fear, disgust.  I understand that people crave a sense of commonality and that those outside that commonality face prejudice.  That it is so, and understanding that it is so, doesn’t help me to understand why.

I’m thankful for the progress that has been made and look ahead sadly to how much more must be done.  But, my boys are lucky.  They have a chance.  So many have their chances stolen from them by prejudice and hatred.  I cannot help but think my failure to understand leaves me powerless to affect needed changes.  But I will try.  Everyone deserves the chance to live, to be educated, to grow, to develop – without artificial roadblocks keeping them from their own potential.

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Back to School Transitions

  • Posted on September 2, 2009 at 2:34 PM

With his backpack and jacket on for the first time in three months, Alex knew it was time to go back to school.  He bounced around the living room excitedly and would take me by the hand every now and then to lead me to the door as if to say, “Let’s go already!”  I let him lead me until we had a good view of the street and would say, “The bus isn’t here yet, so we’re still waiting.”  Alex accepted this answer.  He waited for about five minutes, and then he’d take me by the hand once again.  When the bus finally arrived, he skipped merrily outside to the bus.

Ben was a little less enthusiastic.  Alex got used to the early bus rides.  His bus usually comes between 7:15 and 7:30.  For the last few years, Ben rode a different bus which took him to a different school.  He rode out in the afternoons, not the mornings.  Yesterday was his first full day of school.  Ben went off to school willingly, but cautiously.  For Ben, everything was new.  Riding the bus in the morning was new.  Riding to school with Alex was new.  The bus driver was new.  The aide was new.  The school was new.  The teacher was new.  His schedule was new.  All this newness must have caught up with him.  About 2pm he threw up at school.  He isn’t sick – at least he’s not acting sick.  Still, he threw up.  Perhaps this was his only way to communicate his distress.  Perhaps the distress itself caused the vomiting.  Both Alex and Ben (Alex more so) have tender tummies.  We’ve never really figured out why they throw up in certain situations.  There’s no medical reason that we know of most of the time.  Often it seems to be a sensory processing thing.  But, without the details of what was going on, it’s impossible to know what happened at school.  When he got home, he was fine.

Willy’s day at Roosevelt was a bit more confusing.  Unlike his brothers, Willy didn’t have a full day of school.  Different school, different schedule.  Yesterday, Willy and I went to Roosevelt to register.  There was a lot of sitting and listening and standing and waiting.  Both listening and waiting are difficult for Willy.  He came away with two salient points from the first talk.  First, he has a new principal.  Second, he’s going to be learning some Chinese this year.  So, while we were waiting for the second talk, he recited what little Chinese he’d picked up from the new Dora copycat, Kai-Lan.  That didn’t take long, so then we switched to Spanish (which I know a little of, but not much after years on non-use).

Willy knew the fifth grade teachers, which was good to see.  He was excited about the teacher he was placed with and the teacher seemed prepared to have Willy in his class.  Though, I’m not sure if Willy got much out of the talk.  I learned a few important things that are good to know, like I’m supposed to sign his assignment book each day and that they prefer parents to pick up the homework the day kids are sick, not when they return to school.  By the time, Willy was too wiggly to concentrate.

When we finally got to go up to the classroom and unload the heavy backpack, Willy was able to find his desk immediately.  It probably helped that his was the only desk with a weighted vest hanging off the back and a textured “cushion” on the chair – two tools that help Willy concentrate.  Inside the desk we found a copy of Willy’s schedule, and another hanging in his locker.

Overall, I would say it was a smooth transition.  As excited as they were for school to be over, they were all excited to start back up again.  Major transitions like this are rarely this easy for us.  Only time will tell if we’re sailing smoothly or if Ben’s incident hints at some rougher waters to come.

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